The Weight of Being the ONLY: Isolation as a Black Lobular Breast Cancer Survivor

What does it feel like to walk into a room as the only Black lobular breast cancer survivor and advocate?

To hear people discuss the need for diversity while you’re sitting right there, feeling invisible?

These questions have stayed with me since the International Invasive Lobular Carcinoma Symposium in San Francisco last month.

As a 10-year survivor, being at a symposium dedicated to the type of breast cancer that changed my life was deeply meaningful. I felt encouraged by the research and hopeful about what it could mean for our community.

I also felt isolated, angry, and exhausted.

Those feelings existed together. I didn’t leave my gratitude behind when I felt disappointed. I didn’t stop caring about the science when I struggled to focus on it.

I was carrying all of it.

Before arriving, I already suspected I would be “the only.” I felt pressure to look polished, memorable, impossible to overlook. My clothes and vintage hats were my usual style, but the calculation underneath was exhausting: What would it take to have my presence and my expertise recognized?

And yes, my hat game was on point.

But underneath that hat, I couldn’t relax.

There were moments when I felt spoken to as though I were brand new to advocacy. I had brought years of experience collaborating with researchers, clinicians, industry, and fellow advocates. Having to establish that credibility took energy I wanted to spend learning and connecting.

When another white survivor told me Black women had attended the previous symposium, I suppose she meant to reassure me. Instead, I felt enraged.

Who had asked why they hadn’t returned?

Who was acknowledging what it felt like to be there now, alone?

Ali, AmyEllen, and Kathryn took time to meaningfully engage with me. Their kindness helped me keep showing up.

I don’t particularly like the term “ally.” Listening, supporting, and caring, even when someone’s truth makes you uncomfortable, should be part of being a good human.

Megsie & Ali

Their care mattered. So did the isolation.

That is part of the complexity of a cancer experience: you can find connection and still feel profoundly alone. You can celebrate progress while questioning who will benefit. You can feel proud of showing up and resent how much showing up demands.

Holding those emotions takes energy. It shapes what you can absorb, how safe you feel speaking, and whether you have the capacity to return.

So I want organizers, researchers, clinicians, and advocates to ask:

Who is missing, and why?

If someone attended before but didn’t return, has anyone asked them why?

How are you intentionally engaging Black people affected by lobular breast cancer and the broader Black breast cancer community?

And are you prepared to believe what they tell you?

Please sit with that last question.

When I describe feeling dismissed, listen before explaining someone’s intentions. Intentions do not erase impact. The one Black survivor in the room should not have to educate everyone while trying to participate.

The financial burden added another layer. Although I received a travel grant, I had to front the entire cost. The fact that I had to initiate the communication, ask about reimbursement, and send follow-ups really angered me.

My credit card bills do not pause.

That frustration now sits alongside everything meaningful I gained.

During Breast Cancer Awareness Month, we need room for the full emotional reality of survivorship. Gratitude, anger, hope, and disappointment. I shouldn’t have to silence one feeling to make another believable.

I care deeply about this work. I want Black survivors to find community and have their expertise respected.

I’m proud I showed up. I’m grateful for the connections. I’m angry about what it cost me.

How much more am I expected to carry just to be included?

Until next time,

Warrior Megsie

Featured graphic: @emotionally.perfect on IG

3:05 PM: The Cancer Call That Changed Everything

Eleven years after receiving my breast cancer diagnosis at work, I’m reflecting on what that call took from me, what it exposed, and how it forced me to reclaim my voice.

At exactly 3:05pm. on Monday, September 14, 2015, my phone rang while I was at work.

“You have invasive lobular breast cancer.”

There are moments when time does not simply stop. It fractures. There is the life you were living seconds before, and then there is the life you are expected to somehow keep living after.

I was 39 years old. I was at my desk and ran into an empty conference room. I walked out like a zombie as coworkers asked if I was okay. I had just received life-changing news with nowhere private to fall apart.

How was I supposed to hide what was happening on my face? How was I supposed to control my breathing, gather my things, answer questions, or pretend I was still capable of finishing the workday? In an instant, the most terrifying and intimate news of my life became visible to people at work before I had even processed it myself.

No one should receive a cancer diagnosis alone while at work.

Eleven years later, I still wonder why there is no consistent national standard for delivering a positive cancer result. If the results show cancer, why not ask the patient to come into the office and tell them to bring someone they trust? Yes, they would know the news was likely serious. But they would also be in a private space, with support beside them and a medical professional present to answer questions while the shock unfolded in real time.

A cancer diagnosis should not arrive between emails, meetings, and office small talk.

For Black patients, the workplace carries another layer of fear. When you are the only Black person on a team or in a department, you already understand that you may be watched, judged, or misunderstood differently. You think about how much emotion is considered acceptable. You think about protecting your position. And when cancer enters the picture, you need that job—and its health insurance—more than ever.

Even in crisis, I knew I could not afford to appear unstable, unreliable, or incapable. I did not yet have the language for all of that. I only knew I was terrified, exposed, and trying to survive a workday after hearing words that had just split my life into before and after.

I Could Never Be “Just” a Cancer Patient

When I entered cancerland, I wanted to be a cancer patient and, eventually, a cancer survivor. That was already more than enough to carry.

But I quickly learned that I would never be allowed to be “just” either one.

I would always be a Black cancer patient and a Black cancer survivor because Black is what people often see before they see my records, my education, my questions, or my expertise.

Medical professionals and specialists questioned my invasive lobular breast cancer diagnosis or expressed surprise that I did not have triple-negative breast cancer because of its prevalence among Black women. I was not a stereotype or a statistic, yet too often I felt like people were trying to fit my body into both.

Racism and microaggressions followed me through workplaces and cancer centers. My tone could be policed. My confidence could be read as arrogance. My intelligence could feel threatening to people who had already decided what role I should occupy.

A fellow Black survivor named Karen once helped me understand something that was difficult to accept. I had grown up in predominantly white neighborhoods, attended a predominantly white high school and college, and often participated in activities where I was the only person who looked like me. I had accumulated experiences and accolades, believing they would speak for me. But in the “real world,” people would still see a Black woman first, and some would feel threatened once they realized I was smart, too.

That truth did not disappear inside cancerland.

That may be one of my greatest heartbreaks from the past eleven years: racism seeps into every facet of cancerland, too. I may have been naive enough to believe that because we all bleed red and cancer does not discriminate, people in the medical and patient communities would not discriminate either.

I was wrong.

In 2015, I walked into in-person support groups and was the only Black person there. Years later, during COVID, I was sometimes still the only Black person in virtual meetups and young adult cancer support spaces. I was a Black woman diagnosed in my 30s, yet I rarely saw myself reflected in the brochures, resources, or images placed in my hands.

It is difficult to feel supported in a space where you first have to explain your existence.

Cancer Followed Me Back to Work

Treatment ended, but cancer did not politely leave my career alone.

I returned to work carrying fear that no one could see. Then I landed what felt like my absolute dream job at a major advertising agency. I was finally being paid what I was worth. After everything cancer had interrupted, it felt like I had reclaimed part of the future I thought I was building before that phone rang.

Then the chemo brain became debilitating.

I struggled to retain information. At one point, I could not remember how to get home. My body was also intolerant of multiple post-treatment medications I was expected to take for 10 years. I was trying to protect my health, preserve my income, prove my competence, and understand a body and brain that no longer operated the way they once had.

Then two white female bosses told me I had to choose between my job and my health.

I was shattered.

I did not fully understand my legal rights as a cancer patient at the time. I did not discover Cancer and Careers until later. I only knew that the dream job I had worked so hard to reach was slipping away because of the long-term effects of the treatment that had kept me alive.

Cancer crippled my momentum, nearly crushed me financially, and derailed professional goals. I temped at multiple jobs to pay for coverage through the Affordable Care Act because I had to have insurance. I needed medication. I needed medical care. Survival had become its own full-time job, yet survival did not come with a paycheck.

The Pivot I Never Expected

COVID was horrific. It brought staggering loss of life, permanent damage, isolation, and grief that continues. I would never romanticize it.

But within that terrible period, something shifted for me. The world’s pivot to virtual connection created an opening I had not been able to find before. It helped me change the direction of my career and begin trusting my ability as a writer.

I had been deeply insecure about my writing. Yet writing, along with my theatre background, became the combination of talents that launched me into cancerland as a patient expert. Those gifts connected me with people who did not view me as someone who should remain confined to assistant roles. They saw my ideas, my voice, my creativity, my ability to communicate, and the expertise I had built through both professional experience and lived experience.

I started Life on the Cancer Train because I needed a place to tell the truth about what cancer looked and felt like beyond the pink ribbons and tidy inspiration. Over time, the blog became more than a place to process my diagnosis. It became a record of survivorship, racism, grief, work, health inequity, humor, rage, creativity, and the refusal to let other people flatten me into a single story.

Discovering James Baldwin later in life helped recalibrate my mindset. I began doing the difficult work of unlearning anti-Blackness and learning the history that the books of my childhood never taught me. I studied the brilliance of the Black community differently. I reclaimed my voice. I developed the clarity to recognize and name how minoritized communities are treated, and the courage to speak up even when doing so made others uncomfortable.

What 3:05 PM Means Now

I will never be thankful for receiving that cancer call.

I am not thankful for the trauma, the toxic treatments, the cognitive changes, the financial instability, the racism, the microaggressions, the career disruption, or the years I spent trying to make myself smaller, so other people could feel bigger.

But that call forced me to see the chains of oppression wrapped around my life. Breaking them has been painful, ongoing work. It also forced me to truly see my worth.

I now know that my quirkiness belongs in cancerland.

My creativity belongs.

My Blackness belongs.

My theatre training, writing, humor, strategic mind, lived experience, and professional expertise do not compete with one another. Together, they are my power.

Cancer did not give me my voice. The voice was always mine.

These eleven years taught me to stop asking permission to use it.

So today, at 3:05pm, I will remember the woman sitting at her desk, trying not to unravel where everyone could see. I wish I could stand beside her, take the phone from her trembling hand, and tell her:

You should not have received this news this way.

You deserve privacy.

You deserve support.

You deserve protection at work.

You deserve to see yourself reflected in your care.

You deserve to be believed.

And one day, you will build the very space you needed when that call came.

Not because cancer made you who you are—but because, despite everything it tried to take, you finally stopped allowing the world to tell you who you were allowed to be.

*Selfies by me and used AI to generate composition and background

Until next time,

Warrior Megsie

Behind the Applause: Cancer Survivorship, Caregiving, Pain, and Purpose

One thing I’ve learned this year is that achievement doesn’t erase reality.

People see the stage.

They don’t see the ice packs afterward.

People see the panel.

They don’t see the chronic pain.

People see the article.

They don’t see the medical appointments.

People see the applause.

They don’t see the caregiver stressors.


I’m still balancing a full-time job.

I’m still getting freelance work, though not as much this year.

I’m still navigating survivorship.

I’m still getting freelance work, though not as much this year.

I’m still navigating survivorship.

I’m still advocating and speaking up.

I’m still helping care for my mother.

I’m still managing the invisible consequences of cancer treatment.

Success and time didn’t remove those things.

It simply happened alongside them.


That’s why I keep talking about the modern caregiver.

Because caregiving doesn’t happen in isolation.

It happens between Zoom meetings.

During lunch breaks.

In pharmacy lines.

Late-night phone calls.

Early morning appointments.

It’s invisible labor.

And millions of people are living it every single day.


If my story has taught me anything, it’s this:

You don’t have to wait until life gets easier to step into your purpose.

Sometimes purpose arrives right in the middle of the chaos.

And this time, I’m walking toward it with urgency, courage, and the hard-earned knowledge that my voice was never meant to stay quiet.

I’m not waiting for permission. I’m stepping fully into whatever is next.

Until next time,

Warrior Megsie

Embracing Resilience: A Cancer Survivor’s ASCO Voices Experience

ASCO Voices, aka “Broadway Debut,” Was Never About the Stage

There’s a moment after every big dream comes true when the adrenaline wears off.

Then comes the question:

“Was it really as good as everyone said?”

For weeks after the American Society of Clinical Oncology (ASCO) Annual Meeting in Chicago, I couldn’t bring myself to watch the recording of my ASCO Voices talk.

I had spent months writing every sentence, rehearsing every pause, timing every story, and wondering if seven minutes could somehow change the way clinicians and pharma thought about Black patients and clinical trials.

When I finally pressed play…

ASCO Voices Talk – When Representation Becomes Survival: Changing My Perspective on Clinical Trials

I surprised myself.

It was actually…pretty darn good.

Not because it was perfect.

Because it was honest.

What most people didn’t see that day was everything I carried onto that stage.

I wasn’t simply a speaker.

I was a breast cancer survivor.

A patient advocate.

A professional working in cancerland.

An only child who is a caregiver for my mother, who is living with a rare blood cancer.

A Black woman navigating a country that often feels increasingly hostile to people who look like me.

A survivor who had severe pain from fibromyalgia and bad back pain was screaming.

The chemo-induced peripheral neuropathy knocking me off balance.

My post-cancer body was stiff and overweight due to surgical menopause.

None of that disappeared when I stood in the spotlight.

I just didn’t let it suffocate me.

As a Black woman in and out of cancerland, I’m often praised for being resilient.

But resilience isn’t effortless.

Sometimes resiliency looks like smiling while your pain level is a twelve.

Sometimes it looks like delivering your best performance while compartmentalizing racism, rage, and trauma.

Sometimes it looks like showing up anyway, even when emotionally exhausted.

Watching that recording reminded me that our inner critic rarely tells the whole story.

I didn’t see someone struggling.

I saw someone confident, focused, humorous, and authentic.

And maybe that’s the lesson I needed most.

Sometimes we need to become the audience to finally appreciate our own performance.

When I called ASCO Voices, my “Broadway debut”, people laughed.

I wasn’t joking.

Theatre was my first love.

Long before cancer.

Long before advocacy.

Long before hashtags.

Standing on that stage felt like every version of Megan-Claire finally meeting in one place.

The little girl who dreamed of winning a Tony and an Oscar.

The woman who survived breast cancer but still had dreams.

The advocate who battles impostor syndrome but continues to speak up anyway.

For seven unforgettable minutes…..

I was doing what I love most.

I was just me speaking my truth.

And it was enough.

Until next time,

Warrior Megsie

Confronting Racism: A Personal Evolution

I decided to revisit the original Mixed Fragility piece that I wrote back in May 2020. This is my 2.0 version after spending the last few years fully awake and embracing my Blackness. So, buckle up and read about my evolution and reintroduction to myself.

I felt like I’d been hit on the head — not hard enough to knock me out, but just enough to wake me up.

And once awake, I couldn’t go back to the way things were.

For years, I was uncomfortable being vocal about the racism I saw and experienced. I felt silence was safer. Politeness felt protective. Assimilation felt like survival. But I now understand that my silence didn’t protect me; it only delayed the inevitable reckoning. So, I’ve pushed through the discomfort because remaining quiet has cost me far more than speaking up ever has.

Antiracist educator Robin DiAngelo put words to something I had already been witnessing for years: white fragility. It shows up when white people are challenged about race and immediately become defensive, angry, afraid, guilty, or shut down altogether. Instead of leaning into discomfort, people often respond by arguing, deflecting, or staying silent. And those reactions aren’t accidental. They work to restore comfort, to reset things back to “normal,” and to avoid the hard, necessary conversations that real cross-racial understanding actually requires.

When I first learned the term, it felt like I had been given new glasses to see clearly with. The more I named racism out loud, publicly, without softening, the more I watched white fragility surface in real time among people I know deeply, and those who only know me at arm’s length.

But what I didn’t yet have language for was my own.

I came up with the term mixed fragility because of my tendency to be defensive, wounded, angry, or dismissive toward the Black community itself — stemming from years of internalized self-protection and self-hate. A fragile balancing act founded on the idea, learned early and reinforced often, that proximity to whiteness might shield me from harm. At the same time, complete identification with Blackness might cost me acceptance, opportunity, or safety.

Even writing that sentence makes my chest tighten.

This realization didn’t come easily. It came with grief, shame, and a deep sadness for the girl I once was — the one who learned very early that belonging always came with conditions.

I grew up in Macon, GA, in a family that was educated, where going to college was not just an option; it was a given. On my mother’s side, both grandparents were college graduates. My parents (divorced when I was 2 ½ years old) both earned master’s degrees; my mother went on to earn two Ph.D.s.

Raised Catholic, I attended St. Joseph’s Catholic School for elementary, Mount de Sales Academy for high school, and later The College of Saint Rose. For much of my childhood, I was either the only Black student in my classes or one of just a few until high school. My mother and I were also among the few Black parishioners at our church.

I took ballet. I threw myself into community theatre. I lived on stages and in rehearsal spaces where, again, I was usually the only Black person present. These spaces became my refuge. They developed me artistically, emotionally, and socially, but they also isolated me in a somewhat protected bubble that I wouldn’t fully understand until much later.

Outside of my family, I had very little sustained Black influence growing up. And when I did encounter Black peers — at summer camps, in school, later in college — I was often told I was “too white,” a “sellout,” that I “talked white.” I wasn’t trying to reject anything. I was just trying to be myself during years that were already painfully awkward.

Those words stuck. They hardened something in me.

My mixed fragility responded with resentment: Why am I being punished for liking what I like? For loving Anne of Green Gables? For being theatrical, articulate, earnest? I felt judged, so I judged back. I now know that both sides were operating within systems that taught us to police one another rather than interrogate the structures around us.

I often felt suffocated by insecurity and a sense of not belonging anywhere.

In high school and college, that suffocating grip deepened. I was the only Black cheerleader at Saint Rose in Albany, NY, during my sophomore year in the late 90’s. At basketball games, I heard Black students jeer from the stands: “Quit acting white.” “Cheerleading is for white girls.” I smiled through it until I couldn’t anymore.

I left the team the following year because there are only so many ways you can fracture yourself before something breaks.

What I didn’t yet have language for back then is a term I hear often now: Predominantly White Institution (PWI) trauma. Being in these spaces caused a severe psychological toll, hyper-visible and invisible at the same time. Constantly performing excellence while absorbing microaggressions and outright hostility, recognizing that your presence is conditional.

Despite all of that, I still found myself gravitating toward whiteness.

White friends often told me, “I don’t see your color.” I interpreted that as a compliment. In my mind, it meant they saw me as one of them. I didn’t yet understand that what they were really saying was that they didn’t see the parts of me that required them to change, to listen, to be uncomfortable.

And still, acceptance was never complete.

I wasn’t invited to certain birthday parties or sleepovers because parents didn’t allow Black children in their homes. A boy who had been my dance partner in multiple productions at Macon Little Theatre wasn’t allowed to take me to prom. His parents said, “It’s one thing to be on stage with a n****r, but quite another to be seen in public with one.”

As an adult, I’ve been followed in stores like HomeGoods and Target because I apparently look threatening when wearing a fascinator or vintage hat and carrying a purse that matches my shoes. One of my “favorites” is when someone asks me where something is in the store, assuming I work there. It took years for me to say: You’re being racist. Do I look like I’m wearing a uniform? They always seem shocked and backpedal. I usually just shake my head and walk away.

Then I entered the workforce.

And that’s when I learned “my place.”

No one prepared me for how little my talent would matter once I crossed that threshold. No matter how educated or accomplished I was, I would still be seen first — and often only — as a Black woman. My tone was policed. My ambition is labeled aggression. My confidence read as arrogance. My mistakes were magnified while others were given grace and second chances.

I wasn’t prepared for how exhausting it would be to prove I deserved to be there constantly.

And then came breast cancer.

Cancer didn’t just attack my body; it crippled my momentum, nearly crushed me financially, and derailed professional goals. It interrupted opportunities, altered trajectories, and forced me to rebuild yet again in a system that already offered so little grace.

Surviving cancer is supposed to make you feel victorious. Grateful. Courageous.

Instead, I grieved the career that never got the chance to fully breathe because of surgeries and toxic treatments. I was told I had to choose between my work and my health.

I longed to support myself through media, storytelling, advocacy, and the stage, but anxiety and insecurity kept pulling me under. I wanted to amplify my voice without diluting myself to be palatable or safe.

When Donald Trump entered the White House for the first time, the hostility and overt racism intensified. The permission slip for racism felt signed in bold ink.

I remember a white woman in line ahead of me at the pharmacy pointing at me and telling her misbehaving child that I would “ram my cart into him” if he didn’t behave. It wasn’t an anomaly. It was witnessing, in real time, how hatred is taught. That little boy is being taught to associate Black people with violence.

When I shared that story publicly, many white friends asked why I didn’t say something. They couldn’t understand my silence. But my silence saved me. I think about all the viral videos of white women weaponizing fear, and how deadly the consequences can be for Black people who speak up.

The most painful part?

Another white woman witnessed the entire interaction.

And said nothing.

I am still working through my mixed fragility because the trauma runs deep. But I am no longer confused about this:

I am not protected. Black people are not protected.

My education doesn’t protect me.
My eloquence doesn’t protect me.
My proximity to whiteness never did.

Discovering the works of James Baldwin in 2020 changed everything. My mindset recalibrated in ways that shocked me. As attempts are made to erase Black History, I am grateful for Black creators who ensure our stories endure — reminding me that others’ inferiority projections are not mine to carry.

I have reclaimed my voice.

I speak up for myself and others, even when labeled an “angry and arrogant Black woman.” I don’t care anymore because silence is no longer an option.

Racism exists and is wrong.
Racism infects healthcare and cancerland.
Willful ignorance is wrong.

And while I continue this internal work, I need white people, especially those who say they love and support me, to do their part externally.

Speak up.
Intervene.
Risk discomfort.
Vote with Black people, not against us.

You may not be able to change a racist. But you can change an outcome.

Until next time,

Warrior Megsie

Beyond Apologies: A Black Woman’s Perspective

Though the tears of anger, grief, frustration, and heartache have subsided, I wake today in a cold rage. The protective armor I’ve worn since birth has added another layer, containing the hot rage threatening to consume me. When that fiery rage takes over, I often find myself doing things detrimental to my mental, emotional, spiritual, and physical health. But today, thanks to my amazing therapist and the solidarity of the 92% of Black women who voted blue up and down the ballot, I find the strength to get out of my pajamas and move forward.

The reason I couldn’t contain my emotions until now is simple: the last sliver of hope I held for democracy in this country is gone. For many in the Black community, this loss is not shocking—it’s confirmation. This country thrives off white supremacy, and each time I hear the hollow refrain of “That’s not who we are,” it eats at me. We see through it. We know this country is exactly what it has always been.

For those who are non-melanated—family, friends, the general public—who claim, “Not everything is about race,” let me be clear: you’ve never had to fear for your life while simply existing. Sleeping in your own bed. Grocery shopping. Attending church.

In the cancer community—specifically the breast cancer community—the insistence that “race has no place in cancer” is another layer of denial. Those who make these claims have never experienced the casual cruelty of a nurse or phlebotomist using a larger needle because of the racist myth that Black skin is tougher to penetrate. They’ve never felt the indignity of medical professionals dismissing their symptoms, a reality compounded by outdated medical teachings claiming Black people have a higher pain tolerance than white people. These are not isolated instances. These are patterns rooted in systemic racism. You Can’t Escape Race in Cancer by Megan-Claire Chase

I can feel myself getting worked up again, so I’ll end with this message to my white friends and family. I’m not ready to dive into the additional layers of misogyny and proximity to whiteness from other people of color, but for now, I need certain messages and behaviors to stop. Even if they’re well-intentioned, they are hurtful.

White people, here’s what I need from you:

  1. Stop apologizing. If I get one more “I’m so sorry” text, email, DM, or post, I will scream.
  2. Stop saying we need to organize. Where have you been? Black women have been organizing. You only show up when something affects you, not us.
  3. Stop performative gestures. Blue bracelets, hashtags, or symbolic actions meant to signal you’re “one of the good ones” ring hollow. We see right through it.
  4. Stop sending us quotes or books by Black authors. We already know who inspires us. How do you not see how condescending this is? You’re the ones who need to read, reflect, and share within your white circles.
  5. Stop saying you’re ‘holding space.’ There’s not enough space in the world to hold the daily pain, anger, frustration, fear, and fatigue we endure.

To further express my feelings, I often turn to art, especially performance art. One of my favorite spoken word performances is “Dear White People” by FreeQuency. It resonates deeply, capturing the anger, rawness, and exhaustion so many of us feel. Yet, we rise. We pour into ourselves, into our community, into our faith. It takes longer to bounce back these days, but I (we) always rise.

Featured image: Cancer Health

Until next time,
Warrior Megsie